Stacie Matuska's Fundraising Page
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Stacie Matuska's Fundraising Page
Fundraising Page Image

Lainey has been diagnosed with a devastating neurological disease called Alternating Hemiplegia of Childhood (AHC). The disease constitutes bouts of paralysis lasting minutes, to hours, to days. This paralysis will sometimes alternate from one side of the body to the other, other times it will affect the whole body and it also causes global cognitive and physical impairment/delay. Additionally, about 50% of children with this disease have epilepsy which is the case for Lainey. This disease is literally 1 in a million. There are only 300 known cases in the United States and 1,000 known cases in the world. 

Learn more about Lainey's story here.

There is currently no cure for this disease and there are limited medications available that have variable success in managing the painful and completely disruptive symptoms. BUT, there is HOPE! Cure AHC, AHC Foundation and Hope for Annabel have been working together on a gene therapy effort using Adeno Associated Virus (AAV) as a delivery system for functioning ATP1A3 to compensate for the mutated ATP1A3 associated with AHC. Gene therapy provides a path to a cure for AHC. 

Lainey’s future is incredibly uncertain and we aren’t willing to sit around and let this disease strip her of a full life. Please help us in making a donation to find a cure for this devastating disease.

ABOUT AAV Project and Other Research

With funds raised from the AHC Foundation, we will support AAV gene therapy and other research related to the project.  We believe a path has been identified to a viable permanent treatment: gene therapy.  The gene therapy we propose will involve inserting a functional copy of the ATP1A3 gene into a virus (an adeno-associated virus or AAV) that has been stripped of its harmful payload and its ability to reproduce. The virus will then be injected into the cerebrospinal fluid and will carry the functional gene to the cells in the brain that are failing. By delivering additional functional copies of the gene, we should be able to rescue those cells, and treat the disease permanently. 

Learn more about the project here. 

Supporters
Name Date Amount Comments
Anonymous Friend 07/16/2019 $200.00  
Mariam and David Grigoryan 07/09/2019 $100.00 Prayers and positive healing energy to you and all those affected
Prime Therapeutics 06/25/2019 $988.00  
Catherine Hafdahl 06/24/2019 $50.00  
LifeCore yoga 06/15/2019 $790.00  
General Mills matching 06/15/2019 $2,262.00  
Andrea Klosner 06/11/2019 $50.00  
Anonymous Friend 06/10/2019 $100.00  
Colleen Geraty 06/07/2019 $50.00  
Melissa Schwartz 05/13/2019 $100.00  
Anonymous Friend 04/30/2019 $50.00 Prays to your family.
Anonymous Friend 04/29/2019 $500.00 Sending love and great hope!
Marcia Handahl 04/29/2019 $500.00 Love and prayers are sent your way!!
Robert Ertel 04/28/2019 $200.00  
Sheila Handahl 04/24/2019 $300.00  
Cheryl Karlgaard 04/23/2019 $50.00 We pray for a cure for AHC!! We love you Lainey Don and Cheryl
Ken & Terri Andrzejewski 04/22/2019 $100.00 God Bless you and your family!
Evereve 04/18/2019 $2,502.21  
Wolffs & Cigna 04/15/2019 $242.57  
Anonymous Friend 04/13/2019 $50.00  
Medtronic Corporate Matching 04/11/2019 $5,380.00  
Thrivent Corporate Matching 04/11/2019 $5,000.00  
Vicki Peterson 04/08/2019 $50.00  
Bridget Bakko 04/08/2019 $250.00 Hopeful for a cure! Sending love and well-wishes from Jax
Brian & Kathy Blanchard 04/06/2019 $100.00  
Blair Lyerly-Samuelson 04/05/2019 $50.00 Sending our love and hope for a cure, The Lyerly-Samuelson Family.
Jesse and Stacy Ellens 04/05/2019 $500.00 Sending prayers!
Robert Ertel 04/05/2019 $100.00  
Brian Fahey 04/05/2019 $50.00  
Ed Zarembo 04/05/2019 $200.00 There's nothing much I can really say. I got a hold of your letter through Bob Ertel. This is extremely devastating news. I'm very sorry to hear about Lainey's diagnosis and I can't even imagine what you're going through. I sincerely hope the medical folks are able to help her in some way through research and this gene therapy project. -Ed Z
Dan, Sarah, John, Annika Karlgaard 04/05/2019 $100.00  
Anonymous Friend 04/04/2019 $50.00  
Ray Hoover 04/04/2019 $100.00 Stacie, I'm so very sorry your family is going through this. Though we only knew each other for 3 years 15 years ago, I'm not at all surprised to find you facing this tragedy head on. I can only hope Lainey has the same strength and perseverance that her mom does. -Ray
Stacie Matuska 04/01/2019 $1,000.00 Donation from Matuska family and friends
Rob Matuska 04/01/2019 $1,000.00 Donation from Matuska family and friends
Laurie & Bill Leitch/Gorcica 03/28/2019 $100.00 Please know that we and many others at Atonement hold you all in our arms, and send healing thoughts and prayers to your entire family.
Lainey Matuska 03/28/2019 $50.00 Love, hope and prayers for sweet Lainey and the Matuska Family!
Andrew Miller 03/27/2019 $100.00 Stay strong, Lainey.
Nicole Schafer 03/26/2019 $250.00  
Paul Dorey 03/25/2019 $50.00  
Elaine & Phil Alman 03/21/2019 $50.00 Hopes and prayers for a cure for beautiful Lainey Matuska.
J.A. Wedum Foundation 03/19/2019 $5,000.00  
Stephanie Benson 03/17/2019 $500.00 Donating on behalf of Holly and Scott Ricker
Anonymous Friend 03/17/2019 $50.00  
Jan and Ray Zittlow 03/16/2019 $100.00  
Lizza Sue Photography 03/15/2019 $150.00 Without hesitation Kelly was the very first to jump in and support this cause! I'm so happy we can support AHC and push for a CURE!!!!!
Lizza Sue Photography 03/15/2019 $125.00 Mamma to be, Meredith is happy to be supporting this cause!
Lizza Sue Photography 03/15/2019 $300.00  
Lizza Sue Photography 03/15/2019 $50.00  
Lizza Sue Photography 03/15/2019 $150.00 Praying for this little girl and others for a CURE!
Jaki & Jan Aamodt 03/14/2019 $100.00 Our prayers are with all of you.
Anonymous Friend 03/14/2019 $100.00 While I don't know Lainey personally, her story and courage has touched my heart.
Raj and Emily Chaphalkar 03/14/2019 $50.00 Love from your friends in Saint Joseph/Collegeville.
Nicole Becker 03/13/2019 $25.00 Prayers you get your cure!
Kelsey Kackman 03/13/2019 $100.00 Praying for Lainey!
Anonymous Friend 03/12/2019 $100.00 For Lainey and hope for a cure!
Chris Pettit 03/10/2019 $50.00  
Scott Arundel 03/09/2019 $50.00  
Joel and Alyssa Fisher Family Fund 03/08/2019 $1,500.00  
Julia & Greg Broge 03/06/2019 $50.00 Praying for strength for Lainey and your entire family! Also praying that through the research, they will find a cure!
Fermoyle and Stanislav family 03/05/2019 $100.00 In Honor of: Lainey Matuska and research into her condition
Erin Phillips 03/04/2019 $50.00 It takes a village to raise beautifully special children!
Anonymous Friend 03/04/2019 $100.00  
Nicole Douvier 03/03/2019 $25.00  
Phil & Nancy Sturlaugson 03/03/2019 $250.00 Hoping for a cure!
Irene and Karen 03/02/2019 $100.00 With hope and love for Lainey.
Anne May 02/28/2019 $50.00  
Jennifer Deising 02/28/2019 $25.00  
Luke, Christine, Sophia, William, and Kennedy Karlgaard 02/28/2019 $100.00  
Kevin Winneroski 02/26/2019 $50.00  
Erin Schwind 02/26/2019 $250.00  
Karee, John and Paige Lucchese 02/26/2019 $50.00  
Margie Oleson 02/25/2019 $100.00 Sending love and prayers!
Stephanie Benson 02/25/2019 $500.00 Donation on behalf of Mom Handahl :)
Laura Saltzstein 02/24/2019 $50.00 Keeping your family in my thoughts all the time!
Dina Barsky 02/24/2019 $50.00 Sending you prayers and patience as they find a cure!
Leslie Robertson 02/24/2019 $100.00 Praying for Lainey!
Nancy Ly 02/23/2019 $80.00 Sending love, faith and warmth to Lainey and her family.
Lorrie & Joe Tucker 02/23/2019 $75.00 Keeping you in our prayers.
Michelle Milless 02/22/2019 $50.00 Sending love and prayers to Lainey and your family.
Anonymous Friend 02/22/2019 $30.00  
Rachel and Sam Collette 02/22/2019 $50.00  
Jessica Holck 02/22/2019 $50.00 Love and prayers each day!
Robert Ricker 02/22/2019 $100.00 Uncle Bob and Oma Ricker are sending love and prayers your way!
Maria Simmons (Amaro) 02/22/2019 $100.00 Praying for your precious girl!
Anonymous Friend 02/21/2019 $50.00  
Emma Swank 02/21/2019 $200.00 Dear family, I believe Lainey will get the treatment she needs. She is so precious and so loved. Sending love from Japan! Xo
Jenny Jurek 02/21/2019 $100.00 Prayers for your family as you fight for a cure for your sweet baby girl.
Anna Judnick 02/21/2019 $75.00  
Danielle Lewis 02/21/2019 $100.00  
Brigette Kerber 02/21/2019 $50.00 Supporting you through this fight! In honor of our sweet angel Lynnea
Sayuri Sakamoto 02/21/2019 $100.00 May all be happy,
Kevin Wellmann 02/21/2019 $1,000.00 Praying for a cure.
Josh Wille 02/20/2019 $50.00  
Joe Sebesta 02/20/2019 $50.00  
Caitlin Linster 02/20/2019 $20.00 For a beautiful family.
Ryan & Kate Campbell 02/20/2019 $100.00 Sending our love and prayers to Lainey and family.
Gaby & Lexi Mielke 02/20/2019 $150.00 We love you Lainey!
William Estrem 02/20/2019 $50.00 Good luck dealing with this terrible illness. I hope they are able to come up with a cure.
Kalley Leer 02/20/2019 $50.00 Sending love and strength to you all.
Anonymous Friend 02/20/2019 $100.00 For Lainey and a cure
Colin Waitt 02/20/2019 $50.00  
Jessica & Scott Snyder 02/20/2019 $100.00 Keep fighting and never lose hope! Lainey and her amazing family will be in our prayers.
Steve & Pat Ahlberg 02/20/2019 $200.00 Love and prayers for all of you
Alexis Gibb 02/20/2019 $100.00  
Jessica Evans 02/20/2019 $50.00 Sending our love and prayers!
Maggie + Marshall Jacobson 02/20/2019 $100.00  
Anonymous Friend 02/20/2019 $40.00  
Anita & Bob Carlson 02/20/2019 $50.00 Praying for Lainey!
Anonymous Friend 02/20/2019 $20.00 Praying for your sweet little girl!
Kevin Bergeson 02/20/2019 $20.00 Go Lainey!
Melinda Sundquist 02/20/2019 $50.00 Though she be but little, she is fierce...Shakespeare
Anonymous Friend 02/20/2019 $50.00 Praying for you.
Tessa Strack 02/20/2019 $50.00  
Mary Gebhart 02/20/2019 $25.00 From Peter Newby and Mary Gebhart friends of Mary Lou Will.
Ryan & Elizabeth Johnston 02/20/2019 $50.00 Praying for you, Lainey!
Kim and Kevin Burck 02/20/2019 $50.00  
Mark Greco 02/20/2019 $50.00  
Jen & Christian Quie 02/19/2019 $100.00 Prayers & Love for Lainey!
Jon Sauer 02/19/2019 $200.00 Praying for you, Lainey!
Anna & Nick Lovas 02/19/2019 $100.00 Praying for Lainey & family.
Melissa Konrad 02/19/2019 $50.00  
Craig Rueter 02/19/2019 $25.00  
Mostafa Toloui 02/19/2019 $100.00  
Anne Hill 02/19/2019 $50.00 Lainey, you have incredible parents who are going to stop at nothing to do their best for you. We have you in our thoughts sweet little girl!!!! -The Hills
Nick & Gaby Wenck 02/19/2019 $50.00 Sending a hug your way from Amelia!
Kris Andre 02/19/2019 $20.00 Praying for Lainey!!
Rob & Jess Williams 02/19/2019 $50.00  
Laura Loehrs 02/19/2019 $500.00  
Shannon Schneider 02/19/2019 $50.00 Sending you all our prayers sweet baby girl<3 The Schneider’s
Kelly Backes 02/19/2019 $500.00 Praying for sweet little Lainey! Love, the Backes Family
Taylor Pacyna 02/19/2019 $50.00  
Amanda Alex & Alaina Meyer 02/19/2019 $100.00 For Lainey. For the cure!
Megan Fritz 02/19/2019 $100.00  
Anonymous Friend 02/19/2019 $500.00 Praying
Anonymous Friend 02/19/2019 $25.00  
Brooke Johnson 02/19/2019 $100.00 Thinking of your entire family. Lifting you up in prayers
Ryan, Amanda, Clark, Hadley & Archer Wahlund 02/19/2019 $300.00  
Jesus Espina-Velosa 02/19/2019 $100.00 Wishing you the best!
Claire Lande 02/19/2019 $100.00  
The Angell Family 02/18/2019 $100.00 Sending our love and prayers.
Danielle Hoag 02/18/2019 $100.00 Sending all our love to sweet little Lainey! xoxo
Anonymous Friend 02/18/2019 $25.00  
Anna Nelson 02/18/2019 $50.00  
Josh & Christina Kraft 02/18/2019 $100.00 Sending our thoughts, love, and prayers.
Jon & Jess Pasek 02/18/2019 $100.00  
Anne Jewison 02/18/2019 $25.00 Steph Benson shared your story. Prayers for your family and those working to find a cure for this.
Andrea, Miah, Lila, Zach Becker 02/18/2019 $100.00 Praying for Lainey!! ❤️
Anonymous Friend 02/18/2019 $50.00  
Laura and Alex Westberg 02/18/2019 $100.00 We're rooting for you!
Emma Wick 02/18/2019 $5.00  
Kolleen Fulop 02/18/2019 $300.00 Praying for Lainey!
Patrick Brown 02/18/2019 $50.00  
Anonymous Friend 02/18/2019 $50.00 Prayers for Lainey
Tom & Joyce O'Neill 02/18/2019 $100.00 All our love and prayers
Sam and JoJo Barthell 02/18/2019 $100.00  
Megan Foehrenbacher 02/18/2019 $40.00 Hugs to Lainey and your family!
Holly O’Hanlon 02/18/2019 $50.00 Our thoughts are with you all and sweet Lainey! ~ The Brierley Family
Anonymous Friend 02/18/2019 $50.00 Thinking of you all and hoping your prayers are answered quickly.
Lesley Kurowski 02/18/2019 $50.00 Sending prayers ❤️
Bob and Mary Matuska 02/18/2019 $100.00  
Sue Mance 02/18/2019 $100.00  
Erin Koshiol 02/18/2019 $50.00  
Rob & Katie Mark 02/18/2019 $100.00 Sending our love. ❤️
The Wolff's 02/18/2019 $250.00 You've got this baby girl!
Mark Bakko 02/18/2019 $1,000.00 Sending our love, prayers, and hugs to your whole family.
Andy & Amanda Tucker 02/17/2019 $100.00 Praying!
The VanOverbekes 02/17/2019 $200.00  
Sharon De Leon 02/17/2019 $25.00 Prayers for a cure!
Anonymous Friend 02/17/2019 $2,500.00 Rooting for you all the way, Lainey!
Andrea Kales 02/17/2019 $500.00 Love to all of you!!! Holding all of you in prayer and fighting, you got this!!
Annie Carruthers 02/17/2019 $100.00  
Thomas Matuska 02/16/2019 $100.00 Hope for Lainey
Uncle Donny Matuska 02/16/2019 $200.00 And Aunt Alycia
Lori Lewis 02/16/2019 $50.00 Hope for Lainey
Alana Suomela 02/16/2019 $100.00 Hope, prayers, and research for Baby Lainey.
Rich & Nancy Benson 02/16/2019 $100.00 Sending our love, hope and prayers for sweet Lainey and the entire Matuska family.
Stacy Falteisek 02/15/2019 $50.00 Sending lots of hope and prayers for a cure!!
Anonymous Friend 02/15/2019 $1,000.00 Praying for Lainey and all the other kids patiently waiting for this research!
Ashley Olt 02/14/2019 $50.00 Sending hope & prayers your way!
Jay Picconatto 02/14/2019 $100.00 Thoughts and prayers to the whole Matuska family.
Anonymous Friend 02/14/2019 $500.00  
Sarah Taylor 02/14/2019 $200.00 Lots of love for Lainey!
Deena Koenig 02/14/2019 $25.00  
Anonymous Friend 02/14/2019 $5,000.00 For our sweet Lainey- fight hard baby girl! We will be fighting alongside of you!
Rogan Saal 02/14/2019 $100.00 For your sweet little girl and family. Stay strong!
Anonymous Friend 02/14/2019 $50.00 Praying for Lainey and your family!!!
Paula Rabaey 02/13/2019 $100.00 Blessings and hugs to all! Lainey will be in our prayers!
Katie Deutsch 02/13/2019 $300.00 For Lainey and for all. We love you.
Sarah Turley 02/13/2019 $50.00 For brave little girl and her family. Blessings on your journey.
Vicki Holtan 02/13/2019 $100.00 I believe in the promising research that is going on with the AAV project! I will pray for the amazing individuals and groups who are using their time and gifts to find a cure!
The Brum Family 02/13/2019 $50.00 Praying for sweet Lainey and her family.
Steph Toutant 02/13/2019 $100.00 Praying for you guys! -PJ & Steph Toutant
Lori and Vince Mohs 02/13/2019 $100.00 For Baby Lainey
Jen Corrigan 02/13/2019 $50.00  
Sarah Martin 02/13/2019 $100.00 Lifting up sweet Lainey and family! She is one loved girlie!
Natalie Richards 02/13/2019 $20.00 Thank you for sharing your story. We will be praying for a cure
Anonymous Friend 02/12/2019 $50.00  
Michelle Luetkemeyer 02/12/2019 $50.00 Love for Lainey
Heather Lucia 02/12/2019 $100.00  
Cindy Egeness 02/12/2019 $50.00  
Paula Gajewski Mickelson 02/12/2019 $50.00  
Sam & Nick Erickson 02/12/2019 $50.00  
Martha Phillips 02/12/2019 $50.00  
The Bergman Family 02/12/2019 $5,000.00 Hope and prayers!
Anonymous Friend 02/12/2019 $100.00 Love to your family
Kim Sands 02/12/2019 $50.00 Praying for Little Lainey
Katie Doerer 02/12/2019 $100.00  
Denise Inmon 02/12/2019 $100.00 Lots of love and prayers for the entire Matuska family!
Kelly Sykes 02/12/2019 $50.00 Big hope for baby Lainey
Kristin Chalberg 02/12/2019 $50.00  
LH Gildensoph 02/12/2019 $50.00 Sending love and hugs
Mike & Sarah Maddox 02/12/2019 $50.00  
Dawn Erickson 02/12/2019 $100.00 All our love to your family! #laineystrong
Kevin Stickney 02/12/2019 $300.00 Hope for Lainey!
Kari Rhode 02/12/2019 $100.00  
Nate Sis 02/12/2019 $250.00  
Adam Eckhardt 02/12/2019 $100.00 Praying for Lainey!
Anonymous Friend 02/11/2019 $50.00  
Katie & Steve Gunville 02/11/2019 $30.00 Praying for you!
Mary Hearst 02/11/2019 $200.00 Our love to you all.
Jenna Iaizzo 02/11/2019 $300.00 For Lainey!
Mike & Manuela Benson 02/11/2019 $50.00 Praying for you❤️
Emma Wick 02/11/2019 $20.00  
Anonymous Friend 02/11/2019 $25.00  
Lindsay Howard 02/11/2019 $50.00  
Peter Lee 02/11/2019 $100.00 Go Lainey!!!
Mike Klaas 02/11/2019 $50.00  
Brent Thiesen 02/11/2019 $30.00  
Sarah Lenton 02/11/2019 $50.00  
Peter Schreiber 02/11/2019 $50.00  
Mike DiAngelis 02/11/2019 $100.00  
Rachel Evans 02/11/2019 $50.00  
Charley O'Neill 02/11/2019 $100.00  
Kathleen Matuska 02/11/2019 $100.00  
Tommy Bennett 02/11/2019 $25.00  
Meg and Eva Meierhoff 02/11/2019 $100.00  
Lee Zehnder 02/11/2019 $25.00 Lainey you got this!! Love, Zehnders
Meghan Riley 02/11/2019 $100.00  
Anonymous Friend 02/11/2019 $100.00  
Anonymous Friend 02/11/2019 $100.00  
Cecilia Konchar Farr 02/11/2019 $25.00  
The Langs 02/11/2019 $250.00 We love you all!!!!!
Lainey Matuska 02/11/2019 $50.00  
Anuja Deshpande 02/11/2019 $50.00  
Christy Ressler 02/11/2019 $50.00  
Bob&Betty Smith 02/11/2019 $50.00 Prayers sent for Lainey and the entire family
Anna and Toby Silverman 02/11/2019 $50.00 For sweet angel Lainey and her fight!
Abbey Sjogren 02/11/2019 $100.00 Praying for you sweet girl.
Robyn Boche 02/11/2019 $100.00 Sending love to you all!
Quita Oleson 02/11/2019 $150.00  
Shannon Quealy Dye 02/11/2019 $100.00 Sending love
Lauren Byrd 02/11/2019 $50.00 Hope!
Clare O'Brien 02/11/2019 $75.00  
Melissa Preusser 02/11/2019 $50.00 Prayers for Laniey and her family.
Laura Dourgarian 02/11/2019 $100.00  
Anonymous Friend 02/11/2019 $100.00 There's always money in the banana stand
Ashley Schafer 02/11/2019 $100.00  
Brittan Leiser 02/11/2019 $50.00 Thinking of you, Stacie! You and your adorable family are in my thoughts and prayers! Here’s hoping little Lainey can participate in future “Fall baking days” with you when she’s older :)
Whit & Terri 02/11/2019 $50.00 Love & Hope :)
Kevin Greer 02/11/2019 $100.00  
Anonymous Friend 02/11/2019 $100.00  
Tieg & Bri Herman 02/11/2019 $100.00  
Kelsey Graf 02/10/2019 $300.00 For our sweet superhero! Xoxo The Grafs
Katie Rogstad 02/10/2019 $50.00 For baby Lainey ❤️
Ryan, Andrea, Bauer Beduhn 02/10/2019 $500.00 Let’s do this!!!!!!!! We love you!!!
Adam, Kayla, and Madeline Butler 02/10/2019 $100.00 We love you, sweet girl!
Kristin Moran 02/10/2019 $100.00 Praying for you guys every step of the way! Love, Andrew and Kristin Moran
Megan Jorgensen 02/10/2019 $100.00 We love you Lainey! Let’s find a cure! Love from the Jorgensens
The Novaks 02/10/2019 $75.00 For Lainey ❤️
Allison, Bob, Cameron Ertel 02/10/2019 $100.00  
David Weller 02/10/2019 $500.00 It may have been a long time sence we've seen each other but we will always be friends.
The Zittlows 02/10/2019 $300.00 We love you sweet Lainey girl!! ❤️
Lydia Turnbull 02/10/2019 $250.00 Thinking of Lainey and you all
Shannon & Ron Cooper 02/10/2019 $300.00 We love you sweet girl!
Brooke Valenta 02/10/2019 $300.00 We Love you sweetest Lainey! The Valenta’s!
Bryan & Liz Bauck 02/10/2019 $30.00 Praying for you Lainey❤️
Bruce & Lynette Butler 02/10/2019 $100.00  
Nick and Katie Leiting 02/10/2019 $50.00  
Stephanie Benson 02/10/2019 $25.00 Donating on behalf of Jamie Furey and family.
Nicole, Brendan and Theo Buster 02/10/2019 $50.00 Thinking of you all!
Michelle Mccambridge 02/10/2019 $200.00 HOPE
Tom Parker 02/10/2019 $100.00  
Sonja Hall 02/10/2019 $100.00 Sending love!
Kasey Dolejsi 02/10/2019 $30.00 For Lainey girl
Nick, Abbey & Elin Serati 02/10/2019 $150.00 For one brave little girl. Love you guys!
David Naab 02/04/2019 $100.00  
  Total $70,749.78  
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