Kathryn needs her Warriors!
Kathryn loves being outside, camping with the family is a new favorite! Episodes are inevitable, and often difficult to predict. When she has an episode, and is paralyzed on one half of her body, she still tries to play and walk. During episodes, it is as if she is behind a screen and can’t move or talk, but she understands everything. So we are inspired to be hopeful and strong for her. And we know that with the strides researchers and doctors are making every day, there is an answer for her and all AHC kids.
Let's get together and get outside where Kathryn loves to be. Walk, ride, run, knit, or pray with us Ocotber 4th.
The AHC Foundation needds our help to continue to pursue a treatment for AHC.
The Race to END AHC is on! For over 25 years the AHC Foundation has been in the race to treat or cure AHC for all our AHC kids. It has been a long race, and the foundation has covered much ground by taking many steps toward that goal.
Through research, education and family support, we have ONE MISSION: END AHC
Through these three pillars of our mission, the AHC Foundation works to provide the community support and hope as we all move through this journey. Funding RESEARCH from small studies to gene discovery, to collaboration on landmark gene therapy that holds much potential; providing EDUCATIONAL resources to families through support groups, introductions to physicians, and our website; SUPPORTING FAMILIES through our support group, biennial family meetings, and availability of volunteers for crisis; are all ways the AHC Foundation works to END AHC.
Join us in fundrasing to continue to provide resources to families, fund research with high potential, and raise awareness to rare disease.