Pas & I were introduced to the AHC foundation in 2003 through past President Richard George, his wife Rhonda and son Nicky who has AHC. I became the Foundation's Medical Liaison in 2005 and Coordinator in 2010. Pas has had the role of Foundation Attorney since 2005. With each family we have met our love and determination has grown to help in any way we can to bring support, education and research to these amazing kids and their parents. These kids face a huge struggle each day and I have never seen a group anywhere that matches their grit nor their parents' advocacy. Each and every AHC child and adult deserves to live a pain free normal life. Please join us in this race! Every dollar raised brings that dream so much closer!
The Race to END AHC is on! For over 25 years the AHC Foundation has been in the race to treat or cure AHC for all our AHC kids. It has been a long race, and the foundation has covered much ground by taking many steps toward that goal.
Through research, education and family support, we have ONE MISSION: END AHC
Through these three pillars of our mission, the AHC Foundation works to provide the community support and hope as we all move through this journey. Funding RESEARCH from small studies to gene discovery, to collaboration on landmark gene therapy that holds much potential; providing EDUCATIONAL resources to families through support groups, introductions to physicians, and our website; SUPPORTING FAMILIES through our support group, biennial family meetings, and availability of volunteers for crisis; are all ways the AHC Foundation works to END AHC.
Join us in fundrasing to continue to provide resources to families, fund research with high potential, and raise awareness to rare disease.
| Supporters | |||
| Name | Date | Amount | Comments |
| Wine Barrel Plus | 10/11/2020 | $750.00 | Mark George | 10/11/2020 | $750.00 | Carol Jaworski | 10/11/2020 | $50.00 | Marvin Dudek | 10/07/2020 | $103.30 | Mario Liegghio | 10/04/2020 | $50.00 | Michael Jahn | 10/04/2020 | $51.80 | Keep up the good work Sharon & Pas ! | Rick Taszreak | 10/03/2020 | $51.80 | Lou & Jerry Ciccodicola/Ryan | 10/03/2020 | $103.30 | Dominic & Diana Lemma | 09/29/2020 | $250.00 | Mo Goodrick | 09/25/2020 | $1,000.00 | In honor of Ed Goodrick | Pasquale & Wendy Ciccodicola | 09/20/2020 | $103.30 | Anthony Ciccodicola | 09/19/2020 | $100.00 | Clare Hopkins | 09/10/2020 | $100.00 | Theresa Purchase | 09/07/2020 | $102.02 | Fuzz Corey | 09/05/2020 | $31.53 | Jerelyn Marinelli | 09/05/2020 | $51.80 | Sharon Ciccodicola | 08/21/2020 | $.00 | Sharon Ciccodicola | 08/21/2020 | $104.37 |
| Total | $3,753.22 | ||