Stellie's Race to END AHC
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Stellie's Race to END AHC
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Estella has AHC, which is short for Alternating Hemiplegia of Childhood.  AHC is an ultra-rare neurological disease that affects 1 in 1 million kids. AHC causes episodes of paralysis, uncontrollable eye movement, uncontrollable muscle movement, intellectual disabilities, behavior disorders, and difficulty walking. These episodes can last for minutes, or even days and they occur without warning. Currently, there is no cure for AHC. But AHCF is funding research to develop a cure, and with enough money, we believe we can END AHC.

Join us on Sunday, October 4, at the 5k to End AHC for Estella, Steve will be running on a marathon relay team! There will 3 runners, completing a total of 26.2 miles while running along the 5k route. With a goal of $500/mile, would you prayerfully consider donating to this cause to fund research for AHC? We are asking for individuals, families, or businesses to sponsor each mile we are running. Every dollar counts and we will be recognizing mile sponsorship at the following levels below:
Bronze-$250-$500
Silver-$500-$1000
Gold-$1000+

So how does this work? If you are feeling led to donate and sponsor a mile of the marathon, please reach out to us through our Facebook page, END AHC for Estella, or Rachel Van Maanen by contacting her at 641-780-5072. Let us know what mile you would like to support and what amount of money you would like to donate. You donate directly through the link on Estella's page, or you can mail a check and we can manually enter it on the website and send you a donation receipt.

Thank you for joining us in the Alternating Hemiplegia of Childhood Foundation's RACE TO END AHC: A MILLION STEPS TO A CURE virtual event.  Stellie has been running a hard race, and now she needs your help! You can find Estella's story on Facebook by searching End AHC for Estella or click here. All proceeds from the event will assist the AHCF in fulfilling its mission: END AHC! Please donate on behalf of Estella and for all kids struggling with AHC. A donation, of any amount, will take us one step closer to ENDING AHC! 

ABOUT Race to End AHC

The Race to END AHC is on! For over 25 years the AHC Foundation has been in the race to treat or cure AHC for all our AHC kids. It has been a long race, and the foundation has covered much ground by taking many steps toward that goal. 

Through research, education and family support, we have ONE MISSION: END AHC

Through these three pillars of our mission, the AHC Foundation works to provide the community support and hope as we all move through this journey. Funding RESEARCH from small studies to gene discovery, to collaboration on landmark gene therapy that holds much potential; providing EDUCATIONAL resources to families through support groups, introductions to physicians, and our website; SUPPORTING FAMILIES through our support group, biennial family meetings, and availability of volunteers for crisis; are all ways the AHC Foundation works to END AHC. 

Join us in fundrasing to continue to provide resources to families, fund research with high potential, and raise awareness to rare disease. 

www.ahckids.org/race

Supporters
Name Date Amount Comments
Daniel and Leah Hofland 10/25/2020 $51.80 Love and prayers to your family
Third Reformed Church 10/24/2020 $5,000.00  
Greg&Jaime Weeks 10/22/2020 $250.00 We’re praying for you, Estella! You’re surrounded by loving family and friends!
Mark and Rebecca Nikkel 10/21/2020 $103.30 Mark grew up with grandpa Denny and grandma Georgia
Dean & Sharon Renaud 10/21/2020 $50.00  
Ward Van Dyke 10/19/2020 $100.00  
Stuart and Kathy Van Wyk 10/19/2020 $103.30  
Cesar & Ivonne Henderson 10/17/2020 $100.00  
Rey & Freya Stoltz 10/17/2020 $150.00  
John Henderson 10/17/2020 $200.00  
Marcos Otiniano Y Familia 10/17/2020 $60.00  
Maria Holguin 10/17/2020 $20.00  
Jimy Henderson 10/17/2020 $40.00  
Ivonne Otiniano 10/17/2020 $20.00  
Gerald VanderHart 10/17/2020 $100.00  
Cody & Crystal Kirby 10/17/2020 $1,000.00 Flying Dutch Mx Donation Cody and Crystal Kirby
Deb DeVos 10/15/2020 $103.30 Praying for a cure and for good days for Estella and all children with AHC.
Ed & Joyce Dieleman 10/14/2020 $100.00  
Keith & Christine Korver 10/14/2020 $100.00  
John & Shirley Rolffs 10/13/2020 $40.00  
Guy & Janet Jansen 10/13/2020 $25.00 Birthday gift
Cesar Henderson 10/13/2020 $103.30  
Carolyn Ball 10/11/2020 $100.00  
Charlie & Cornelia Jansen 10/11/2020 $100.00  
Joe & Shirley Schutte 10/11/2020 $20.00  
Dena Gearhart 10/11/2020 $100.00  
Anonymous Friend 10/11/2020 $20.00  
Kyle & Tricia Byker 10/11/2020 $50.00  
Janice Hendricks 10/09/2020 $50.00  
Kendra Pothoven 10/09/2020 $100.00  
Earl Richardson 10/09/2020 $100.00  
Illa Guthrie 10/09/2020 $100.00  
Nelson Nikkel 10/09/2020 $50.00  
Lisa Witzenburg 10/08/2020 $51.80  
Anonymous Friend 10/08/2020 $26.26  
Race Day Lemonade Stand 10/08/2020 $1,240.42  
Anonymous Friend 10/07/2020 $103.30  
Jodi Steinbach (Nikkel) 10/06/2020 $20.91 Praying!
Curt & Julie Hooyer 10/06/2020 $102.02  
Richard Vander Laan 10/05/2020 $50.00  
Evan & Christine Vande Haar 10/05/2020 $200.00  
Troy & Stephanie Vander Molen 10/05/2020 $50.00  
Van Wyk Valley View Farms 10/05/2020 $100.00  
Scott & Elise Spronk 10/05/2020 $40.00  
Jeffrey & Marsha Wetter 10/05/2020 $50.00  
Casey Compton 10/05/2020 $200.00  
Brent & Susan Pierson 10/05/2020 $50.00  
Lisa Groenendyk 10/05/2020 $20.00  
Mindi Kacmarynski 10/05/2020 $30.00  
Gary & Lynnette Christensen 10/05/2020 $200.00  
Jason & Kelly Rozenboom 10/05/2020 $50.00  
Doug & Ellie Van Zee 10/05/2020 $100.00  
Craig & Linda Zylstra 10/05/2020 $250.00  
Joe & Katie Hoksbergen 10/05/2020 $150.00  
Dale & Nancy Vander Broek 10/05/2020 $250.00  
Gertrude Van Zee 10/05/2020 $25.00  
Daniel Clark 10/05/2020 $15.00  
Bonnie Vander Weerdt 10/05/2020 $100.00  
Case & Paula De Haan 10/05/2020 $100.00  
Wendy Visser 10/05/2020 $50.00  
Stephanie Groenendyk 10/05/2020 $100.00  
Val Keegan 10/05/2020 $100.00  
Stacy Schutte 10/05/2020 $50.00  
Kim Zantingh 10/05/2020 $206.28  
Papae Wymore 10/05/2020 $51.80 Praying for a cure to end AHCF!
Denny & Connie Vander Weerdt 10/05/2020 $1,000.00  
Randy Taylor 10/05/2020 $200.00  
Larry & Trudy Eggink 10/05/2020 $25.00  
Jeanetta Nieuwsma 10/04/2020 $.00  
Jen Veenstra 10/04/2020 $.00  
Katie Dolejsi 10/04/2020 $.00  
Judy Van Zee 10/04/2020 $51.80  
Bob and Donna Boots 10/04/2020 $103.30  
Anonymous Friend 10/04/2020 $206.28  
Jen Veenstra 10/04/2020 $26.06  
Luke & Jeanetta Nieuwsma 10/04/2020 $103.30 Praying for your family as you fight for sweet, Estella!
Anonymous Friend 10/04/2020 $103.30 praying for a cure
Brittany Dieleman 10/04/2020 $200.00  
Trixanna Wang 10/04/2020 $51.80  
Mike & Marlene Van Soelen 10/04/2020 $506.06  
Sue Schreuder 10/04/2020 $103.30  
Brad and Stephanie Rozendaal 10/04/2020 $51.80 Praying for a cure!
Lori VandeZande 10/04/2020 $51.80 challenge run by the Alex Thomas family
Jen Lowry 10/04/2020 $51.80  
Kristin Bernhagen 10/04/2020 $77.55 Wonderful to see you that you reached your fundraising goal! So glad Estella and you all have the love, support, and prayers of so many people!
Steph Vander Molen 10/03/2020 $.00  
Rindy Vander Schel 10/03/2020 $.00  
Sophie Mathonnet-VanderWell 10/03/2020 $.00  
Guy & Janet Jansen 10/03/2020 $300.00  
James & Donna Hoeksema 10/03/2020 $500.00 Race Sponsor
Sophie Mathonnet-VanderWell 10/03/2020 $51.80  
Ashley Ahlstrom 10/03/2020 $103.30 Sending love from Ahlstrom family
Luke & Kendra 10/02/2020 $1,030.18  
Berto & Hillary Gonzalez 10/02/2020 $103.30  
Anonymous Friend 10/02/2020 $515.24  
Pella Motors 10/01/2020 $300.00 Race sponsor
LeAnn Hjelmeland 10/01/2020 $26.06 I work for the Hometown Press in Sully and my co-worker covered Estella's story in the newspaper this week. My heart goes out to Estella and your family with all you're going through. Praying for a cure, knowing God can and does do amazing things.
Gordy & Chris Gritters 09/30/2020 $103.30 We are praying for you and your family as you go through this!
Bryce & Kathy Engbers 09/30/2020 $1,000.00 Praying for a cure!!
Anonymous Friend 09/30/2020 $15.76  
Anonymous Friend 09/30/2020 $51.80  
Rick Whitaker 09/30/2020 $50.00  
Aileen Taylor 09/30/2020 $50.00  
Corey and Leah Gifford 09/30/2020 $257.78 Race sponsorship
Erica Mulder 09/30/2020 $257.78 Our love and prayers continue to be with Estella and your whole family. Believing there will be a cure for sweet Estella and all the kiddos impacted by AHC. We know our God can make that happen! Love you guys!
Kris DeWild 09/29/2020 $51.80  
Anonymous Friend 09/29/2020 $129.04  
SL Builders 09/29/2020 $515.24  
Adam Slings 09/29/2020 $515.24  
Phil & Vicky Slings 09/29/2020 $102.02  
Jim Kobus 09/29/2020 $20.91 Blessed be the children of God.
Ben & Bailey Van Wyk 09/29/2020 $203.03  
Derek & Lindsey Haan 09/29/2020 $500.00  
Matt and Kim Gritters 09/29/2020 $515.24 We are praying for you and your family. God is so good.
Dan/Tricia Vermeer 09/28/2020 $257.78  
Pella Glass 09/28/2020 $520.00 race sponsor
Steve & Deb Kraayenbrink 09/28/2020 $250.00 race sponsor
Jared & Amanda Van Wyk 09/28/2020 $1,011.11 Race sponser
Leon & Melanie Negen 09/27/2020 $152.53 Our family is praying for yours! May a cure be found for your sweet Estella.
Ralph and LuAnn DE HAAN 09/27/2020 $500.00  
Beth Vanmaanen 09/25/2020 $.00  
Cindy Gritters 09/24/2020 $51.80 Praying for a cure!
LDJ Mfg 09/24/2020 $500.00 race sponsor
Amy Herdegen 09/23/2020 $.00  
Art & Marge Kuiper 09/23/2020 $50.00  
Craig & Fos Van Wyngarden 09/23/2020 $250.00  
Bryce & Donna Arkema 09/23/2020 $150.00  
Amy Herdegen 09/23/2020 $51.80  
Anonymous Friend 09/22/2020 $26.06  
Sherri TeGrootenhuis 09/20/2020 $257.78 Culver's of Pella is happy to be a sponsor!
Joe and Leslie Steinkamp 09/18/2020 $103.30  
Anonymous Friend 09/18/2020 $50.00 race sponsor
Ryan Nugteren 09/17/2020 $62.10  
Home Realty 09/17/2020 $506.06  
Scott & Diane Roose 09/17/2020 $100.00 race sponsor
Jori Wegner 09/17/2020 $412.26 Praying for your Family.
Alex & Allie Thomas 09/16/2020 $206.28 We love you!
Matt & Rachel Van Maanen 09/16/2020 $1,061.62 sponsor 2 miles for race! We love little Estella and your family and we will continue to walk through this journey with you and will support your family in any way we can as you battle this disease and fight for a cure!
Jon & Glenda Van Woerkom 09/15/2020 $309.27 Sponsor relay team Matt & Rachel Van Maanen 5K event along with Estella's fight for healing.
Kendra Zantingh 09/15/2020 $123.89  
Jenna Huitink 09/14/2020 $.00  
Ashton & Jocelyn DeMaster 09/14/2020 $.00  
Ashton & Jocelyn DeMaster 09/14/2020 $102.02  
Anonymous Friend 09/14/2020 $100.00 race sponsor
Zach and Stacy Kanis 09/13/2020 $103.30 My sister Jill DeVries told us about Estella and how you’ve loved her and the Lord through this journey. We offer our prayers and support!
Anna Dykstra 09/13/2020 $51.80  
Duane and Mary Van Maanen 09/13/2020 $100.00 race sponsor
Karen Jenkins 09/13/2020 $100.00 race sponsor
Greg and Marcy Stravers 09/12/2020 $506.06 Praying for your whole family as you fight for Estella!
Andrew & Trisha Schreier Family 09/12/2020 $515.24 As a special needs family we know your journey will take physical and mental strength just like the upcoming marathon race - keep pushing through “One Day at a Time.” We will continue praying for Estella, your family, and a cure!
Anonymous Friend 09/12/2020 $54.79  
Anonymous Friend 09/12/2020 $257.78 Praying for Estella
Jenni Nordaker 09/12/2020 $206.28  
Lacey Henderson 09/11/2020 $100.00  
Anonymous Friend 09/11/2020 $51.80  
Anonymous Friend 09/11/2020 $103.30  
Peilin/Fengyu Yang 09/11/2020 $100.00  
Carroll Hoksbergen 09/11/2020 $150.00 What an incredibly hard journey! We are praying for little Estella, and all of you, including your other children. Hopeful for a cure!
Anonymous Friend 09/11/2020 $515.24 Steve and Lacey- Prayers that God continues to give you strength and that a cure is found for your sweet, Estella! ❤️
Vanessa Swenson 09/11/2020 $203.03 Prayers to your family for a cure!
Teresa Thompson 09/11/2020 $100.00  
Anonymous Friend 09/11/2020 $103.30  
Vicki Self 09/11/2020 $51.80  
Marijka Michmershuizen 09/11/2020 $54.27 I don’t know exactly what you’re going thru, but I’ve been thru hard times, too, and the best advice I can give you is to keep your friends close, focus on the good things in life, read the Bible, and pray a lot. Hope that helps! Our family will be praying for you. From Marijka with tons of prayers!
Cornelia Vander Wilt 09/11/2020 $300.00 Prayers for Estella and all her friends who carry this disease and that a cure may be found.Prayers for her family as they care for her needs.HUGS
Elizabeth Oosterheert 09/11/2020 $103.30 Praying for your family every day!
Ellen Elzinga 09/11/2020 $515.24 My prayers for your family and your sweet girl.
Randy & Jodi De Vries 09/11/2020 $2,601.77  
Dave & Kathi Talsma 09/10/2020 $154.79  
Eden Youngberg 09/09/2020 $154.79  
Stephanie Lantz 09/09/2020 $102.02 May the Lord bring healing in the bodies of children with this disorder!
Jill De Vries 09/08/2020 $.00  
Chad Hall 09/08/2020 $.00  
Rachel Van Maanen 09/08/2020 $.00  
Beth Vanmaanen 09/08/2020 $.00  
Holguin Family 09/08/2020 $350.00 Praying for you and your family.
Tim & Rindy Vander Schel 09/08/2020 $506.06 Praying for your family and a cure for your precious Estella! Donating to sponsor for your marathon.
Anonymous Friend 09/08/2020 $257.78 $250 donated to part of a mile for Matt and Rachel Van Maanen's run for Team Stellie's Race.
Chad Hall 09/08/2020 $26.06  
Chad and Meriel Hall 09/08/2020 $515.24 Praying for your sweet family!
Amanda Van Wyk 09/07/2020 $.00  
Rick & Carla Fopma 09/07/2020 $257.78  
Nicole Vos 09/06/2020 $.00  
Brad Van Wyk 09/06/2020 $103.30 Payers for you guys
Anonymous Friend 09/06/2020 $31.20 Prayers
Judith De Vries 09/05/2020 $.00  
Rebecca Gomez 09/05/2020 $.00  
Sherry Stewart 09/05/2020 $.00  
Lyndi DeVries 09/05/2020 $.00  
Melissa Schettler 09/05/2020 $.00  
Scott & Rachel Renaud 09/05/2020 $1,030.18 We love you SO MUCH, Estella, and we are behind you 100%. We will see the end of AHC!
Melissa Schettler 09/05/2020 $51.80  
Lyndi DeVries 09/05/2020 $26.06  
Sherry Stewart 09/05/2020 $154.79  
Rebecca Gomez 09/05/2020 $51.80 ¡Dios les bendiga Hendersons! ¡Los queremos mucho!
Chad and Mandy Klyn 09/05/2020 $103.30  
AL & Joyce Boender 09/04/2020 $26.06  
Ellen Elzinga 09/03/2020 $.00  
Erick and Annelise Matherly 09/03/2020 $103.30 Praying for you guys! Hope to visit you soon :)
Mark & Vicky Huizer 09/03/2020 $206.28 Praying for a cure for Estella!!
Lacey Henderson 09/02/2020 $.00  
Trent and Megan Pingel 09/01/2020 $51.80  
Rob and Leah Bruxvoort 09/01/2020 $103.30 Praying for a cure, and for strength for your family in the every day needs!
Steve and Tiffany Van Zee 09/01/2020 $103.30  
Aubrey Blom 08/31/2020 $.00  
Melissa Schettler 08/31/2020 $103.30 We’re always thinking of Miss Estella!
Aubrey Blom 08/31/2020 $26.06  
Levi Slings 08/31/2020 $103.30  
Kris Green 08/31/2020 $103.30 Praying
Chad Pitts 08/31/2020 $51.80  
Kent Thoreson 08/31/2020 $103.30  
Kayla Smith 08/28/2020 $.00  
Anonymous Friend 08/28/2020 $51.80 Praying with you!
Chris & Kayla Smith 08/28/2020 $103.30 Praying for a cure for sweet Estella & your incredibly strong family!
Anonymous Friend 08/28/2020 $51.80 With love for Estella and prayers for a cure!
Dan and Jenna Huitink 08/28/2020 $103.30 Praying for and with you guys!
Susan Boxler 08/27/2020 $.00  
Anonymous Friend 08/27/2020 $103.30 Praying for a cure!
Anonymous Friend 08/27/2020 $102.02  
Susan Boxler 08/27/2020 $103.30  
Harley and Stacey Gorter 08/27/2020 $1,000.00 Steve and Lacey, your family is in our thoughts and prayers daily. We are fighting for you every step of the way. Estella is a fighter and we love seeing her progress and meet her goals. Love you all so much!
GeorgAnne Talsma 08/27/2020 $103.30 we pray for a cure and that Jesus will keep you safe every day..
Anonymous Friend 08/26/2020 $51.80 Praying for a cure for this sweet little girl!
Anonymous Friend 08/26/2020 $51.80  
Danae Dorothy 08/26/2020 $31.20 You will always find support at WPU! In the smallest and unexpected places. Prayers and support for your little one!
Shaun and Jill De Vries 08/25/2020 $1,011.11 Praying your family feels God's grace each day and a cure for sweet Estella.
Shawn DeVries 08/24/2020 $.00  
Denny & Georgia 08/24/2020 $1,011.11 Given with all our love. Our prayers continue for a cure for AHC.
Becky Ochsner 08/24/2020 $257.78  
Eli Herro 08/24/2020 $31.20 Mr. Henderson is for sure the best teacher ever. Anything I can do to help him and his daughter is what I will do.:)
Shawn DeVries 08/24/2020 $103.30  
Ivonne Henderson 08/24/2020 $200.00  
Shawn Devries 08/24/2020 $412.26 We love you all and are praying for a cure! ❤️
Tanya Bouma 08/23/2020 $.00  
Lyndi DeVries 08/23/2020 $206.28 Praying for your family and a cure! Hugs!
Anonymous Friend 08/23/2020 $515.24 Continued prayers for your family and a cure! ❤️
Anonymous Friend 08/23/2020 $206.28  
Karen Renaud 08/23/2020 $206.28  
Cindy Stirratt 08/23/2020 $51.80  
Heather Collins 08/22/2020 $.00  
Anonymous Friend 08/22/2020 $515.24 Steve and Lacy, I love you guys and am praying that God grant strength and hope for you and little Estella.
Heather Collins 08/22/2020 $26.06  
Rebekah Eaves 08/22/2020 $20.91  
Dorothy Vos 08/22/2020 $206.28 Given with love to help Estella win the race.
Kendra Zantingh 08/21/2020 $.00  
Dana Oswald 08/21/2020 $103.30  
Emily Craig 08/21/2020 $41.50  
Ashley Hayward 08/21/2020 $77.55  
Emily Fakkema 08/21/2020 $51.80 Sending love and prayers!
Wanda VanderWerf 08/21/2020 $26.06 Father God, Be with these children and their families with comfort, love, strength and healing. Please send us the miracle of a cure in the name of Jesus Christ. Amen
Rochelle Dede 08/21/2020 $103.30 Many prayers ❤️
Denise Ver Meer 08/21/2020 $102.02 Praying for a cure and strength for you!
Nathan & Jana Rus 08/21/2020 $51.80  
Renee Koneck 08/21/2020 $206.28  
Katie Lambrecht 08/21/2020 $51.52  
  Total $49,653.95  
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