Estella has AHC, which is short for Alternating Hemiplegia of Childhood. AHC is an ultra-rare neurological disease that affects 1 in 1 million kids. AHC causes episodes of paralysis, uncontrollable eye movement, uncontrollable muscle movement, intellectual disabilities, behavior disorders, and difficulty walking. These episodes can last for minutes, or even days and they occur without warning. Currently, there is no cure for AHC. But AHCF is funding research to develop a cure, and with enough money, we believe we can END AHC.
Join us on Sunday, October 4, at the 5k to End AHC for Estella, Steve will be running on a marathon relay team! There will 3 runners, completing a total of 26.2 miles while running along the 5k route. With a goal of $500/mile, would you prayerfully consider donating to this cause to fund research for AHC? We are asking for individuals, families, or businesses to sponsor each mile we are running. Every dollar counts and we will be recognizing mile sponsorship at the following levels below:
So how does this work? If you are feeling led to donate and sponsor a mile of the marathon, please reach out to us through our Facebook page, END AHC for Estella, or Rachel Van Maanen by contacting her at 641-780-5072. Let us know what mile you would like to support and what amount of money you would like to donate. You donate directly through the link on Estella's page, or you can mail a check and we can manually enter it on the website and send you a donation receipt.
Thank you for joining us in the Alternating Hemiplegia of Childhood Foundation's RACE TO END AHC: A MILLION STEPS TO A CURE virtual event. Stellie has been running a hard race, and now she needs your help! You can find Estella's story on Facebook by searching End AHC for Estella or click here. All proceeds from the event will assist the AHCF in fulfilling its mission: END AHC! Please donate on behalf of Estella and for all kids struggling with AHC. A donation, of any amount, will take us one step closer to ENDING AHC!
The Race to END AHC is on! For over 25 years the AHC Foundation has been in the race to treat or cure AHC for all our AHC kids. It has been a long race, and the foundation has covered much ground by taking many steps toward that goal.
Through research, education and family support, we have ONE MISSION: END AHC
Through these three pillars of our mission, the AHC Foundation works to provide the community support and hope as we all move through this journey. Funding RESEARCH from small studies to gene discovery, to collaboration on landmark gene therapy that holds much potential; providing EDUCATIONAL resources to families through support groups, introductions to physicians, and our website; SUPPORTING FAMILIES through our support group, biennial family meetings, and availability of volunteers for crisis; are all ways the AHC Foundation works to END AHC.
Join us in fundrasing to continue to provide resources to families, fund research with high potential, and raise awareness to rare disease.
|Daniel and Leah Hofland||10/25/2020||$51.80||Love and prayers to your family||Third Reformed Church||10/24/2020||$5,000.00||Greg&Jaime Weeks||10/22/2020||$250.00||We’re praying for you, Estella! You’re surrounded by loving family and friends!||Mark and Rebecca Nikkel||10/21/2020||$103.30||Mark grew up with grandpa Denny and grandma Georgia||Dean & Sharon Renaud||10/21/2020||$50.00||Ward Van Dyke||10/19/2020||$100.00||Stuart and Kathy Van Wyk||10/19/2020||$103.30||Cesar & Ivonne Henderson||10/17/2020||$100.00||Rey & Freya Stoltz||10/17/2020||$150.00||John Henderson||10/17/2020||$200.00||Marcos Otiniano Y Familia||10/17/2020||$60.00||Maria Holguin||10/17/2020||$20.00||Jimy Henderson||10/17/2020||$40.00||Ivonne Otiniano||10/17/2020||$20.00||Gerald VanderHart||10/17/2020||$100.00||Cody & Crystal Kirby||10/17/2020||$1,000.00||Flying Dutch Mx Donation Cody and Crystal Kirby||Deb DeVos||10/15/2020||$103.30||Praying for a cure and for good days for Estella and all children with AHC.||Ed & Joyce Dieleman||10/14/2020||$100.00||Keith & Christine Korver||10/14/2020||$100.00||John & Shirley Rolffs||10/13/2020||$40.00||Guy & Janet Jansen||10/13/2020||$25.00||Birthday gift||Cesar Henderson||10/13/2020||$103.30||Carolyn Ball||10/11/2020||$100.00||Charlie & Cornelia Jansen||10/11/2020||$100.00||Joe & Shirley Schutte||10/11/2020||$20.00||Dena Gearhart||10/11/2020||$100.00||Anonymous Friend||10/11/2020||$20.00||Kyle & Tricia Byker||10/11/2020||$50.00||Janice Hendricks||10/09/2020||$50.00||Kendra Pothoven||10/09/2020||$100.00||Earl Richardson||10/09/2020||$100.00||Illa Guthrie||10/09/2020||$100.00||Nelson Nikkel||10/09/2020||$50.00||Lisa Witzenburg||10/08/2020||$51.80||Anonymous Friend||10/08/2020||$26.26||Race Day Lemonade Stand||10/08/2020||$1,240.42||Anonymous Friend||10/07/2020||$103.30||Jodi Steinbach (Nikkel)||10/06/2020||$20.91||Praying!||Curt & Julie Hooyer||10/06/2020||$102.02||Richard Vander Laan||10/05/2020||$50.00||Evan & Christine Vande Haar||10/05/2020||$200.00||Troy & Stephanie Vander Molen||10/05/2020||$50.00||Van Wyk Valley View Farms||10/05/2020||$100.00||Scott & Elise Spronk||10/05/2020||$40.00||Jeffrey & Marsha Wetter||10/05/2020||$50.00||Casey Compton||10/05/2020||$200.00||Brent & Susan Pierson||10/05/2020||$50.00||Lisa Groenendyk||10/05/2020||$20.00||Mindi Kacmarynski||10/05/2020||$30.00||Gary & Lynnette Christensen||10/05/2020||$200.00||Jason & Kelly Rozenboom||10/05/2020||$50.00||Doug & Ellie Van Zee||10/05/2020||$100.00||Craig & Linda Zylstra||10/05/2020||$250.00||Joe & Katie Hoksbergen||10/05/2020||$150.00||Dale & Nancy Vander Broek||10/05/2020||$250.00||Gertrude Van Zee||10/05/2020||$25.00||Daniel Clark||10/05/2020||$15.00||Bonnie Vander Weerdt||10/05/2020||$100.00||Case & Paula De Haan||10/05/2020||$100.00||Wendy Visser||10/05/2020||$50.00||Stephanie Groenendyk||10/05/2020||$100.00||Val Keegan||10/05/2020||$100.00||Stacy Schutte||10/05/2020||$50.00||Kim Zantingh||10/05/2020||$206.28||Papae Wymore||10/05/2020||$51.80||Praying for a cure to end AHCF!||Denny & Connie Vander Weerdt||10/05/2020||$1,000.00||Randy Taylor||10/05/2020||$200.00||Larry & Trudy Eggink||10/05/2020||$25.00||Jeanetta Nieuwsma||10/04/2020||$.00||Jen Veenstra||10/04/2020||$.00||Katie Dolejsi||10/04/2020||$.00||Judy Van Zee||10/04/2020||$51.80||Bob and Donna Boots||10/04/2020||$103.30||Anonymous Friend||10/04/2020||$206.28||Jen Veenstra||10/04/2020||$26.06||Luke & Jeanetta Nieuwsma||10/04/2020||$103.30||Praying for your family as you fight for sweet, Estella!||Anonymous Friend||10/04/2020||$103.30||praying for a cure||Brittany Dieleman||10/04/2020||$200.00||Trixanna Wang||10/04/2020||$51.80||Mike & Marlene Van Soelen||10/04/2020||$506.06||Sue Schreuder||10/04/2020||$103.30||Brad and Stephanie Rozendaal||10/04/2020||$51.80||Praying for a cure!||Lori VandeZande||10/04/2020||$51.80||challenge run by the Alex Thomas family||Jen Lowry||10/04/2020||$51.80||Kristin Bernhagen||10/04/2020||$77.55||Wonderful to see you that you reached your fundraising goal! So glad Estella and you all have the love, support, and prayers of so many people!||Steph Vander Molen||10/03/2020||$.00||Rindy Vander Schel||10/03/2020||$.00||Sophie Mathonnet-VanderWell||10/03/2020||$.00||Guy & Janet Jansen||10/03/2020||$300.00||James & Donna Hoeksema||10/03/2020||$500.00||Race Sponsor||Sophie Mathonnet-VanderWell||10/03/2020||$51.80||Ashley Ahlstrom||10/03/2020||$103.30||Sending love from Ahlstrom family||Luke & Kendra||10/02/2020||$1,030.18||Berto & Hillary Gonzalez||10/02/2020||$103.30||Anonymous Friend||10/02/2020||$515.24||Pella Motors||10/01/2020||$300.00||Race sponsor||LeAnn Hjelmeland||10/01/2020||$26.06||I work for the Hometown Press in Sully and my co-worker covered Estella's story in the newspaper this week. My heart goes out to Estella and your family with all you're going through. Praying for a cure, knowing God can and does do amazing things.||Gordy & Chris Gritters||09/30/2020||$103.30||We are praying for you and your family as you go through this!||Bryce & Kathy Engbers||09/30/2020||$1,000.00||Praying for a cure!!||Anonymous Friend||09/30/2020||$15.76||Anonymous Friend||09/30/2020||$51.80||Rick Whitaker||09/30/2020||$50.00||Aileen Taylor||09/30/2020||$50.00||Corey and Leah Gifford||09/30/2020||$257.78||Race sponsorship||Erica Mulder||09/30/2020||$257.78||Our love and prayers continue to be with Estella and your whole family. Believing there will be a cure for sweet Estella and all the kiddos impacted by AHC. We know our God can make that happen! Love you guys!||Kris DeWild||09/29/2020||$51.80||Anonymous Friend||09/29/2020||$129.04||SL Builders||09/29/2020||$515.24||Adam Slings||09/29/2020||$515.24||Phil & Vicky Slings||09/29/2020||$102.02||Jim Kobus||09/29/2020||$20.91||Blessed be the children of God.||Ben & Bailey Van Wyk||09/29/2020||$203.03||Derek & Lindsey Haan||09/29/2020||$500.00||Matt and Kim Gritters||09/29/2020||$515.24||We are praying for you and your family. God is so good.||Dan/Tricia Vermeer||09/28/2020||$257.78||Pella Glass||09/28/2020||$520.00||race sponsor||Steve & Deb Kraayenbrink||09/28/2020||$250.00||race sponsor||Jared & Amanda Van Wyk||09/28/2020||$1,011.11||Race sponser||Leon & Melanie Negen||09/27/2020||$152.53||Our family is praying for yours! May a cure be found for your sweet Estella.||Ralph and LuAnn DE HAAN||09/27/2020||$500.00||Beth Vanmaanen||09/25/2020||$.00||Cindy Gritters||09/24/2020||$51.80||Praying for a cure!||LDJ Mfg||09/24/2020||$500.00||race sponsor||Amy Herdegen||09/23/2020||$.00||Art & Marge Kuiper||09/23/2020||$50.00||Craig & Fos Van Wyngarden||09/23/2020||$250.00||Bryce & Donna Arkema||09/23/2020||$150.00||Amy Herdegen||09/23/2020||$51.80||Anonymous Friend||09/22/2020||$26.06||Sherri TeGrootenhuis||09/20/2020||$257.78||Culver's of Pella is happy to be a sponsor!||Joe and Leslie Steinkamp||09/18/2020||$103.30||Anonymous Friend||09/18/2020||$50.00||race sponsor||Ryan Nugteren||09/17/2020||$62.10||Home Realty||09/17/2020||$506.06||Scott & Diane Roose||09/17/2020||$100.00||race sponsor||Jori Wegner||09/17/2020||$412.26||Praying for your Family.||Alex & Allie Thomas||09/16/2020||$206.28||We love you!||Matt & Rachel Van Maanen||09/16/2020||$1,061.62||sponsor 2 miles for race! We love little Estella and your family and we will continue to walk through this journey with you and will support your family in any way we can as you battle this disease and fight for a cure!||Jon & Glenda Van Woerkom||09/15/2020||$309.27||Sponsor relay team Matt & Rachel Van Maanen 5K event along with Estella's fight for healing.||Kendra Zantingh||09/15/2020||$123.89||Jenna Huitink||09/14/2020||$.00||Ashton & Jocelyn DeMaster||09/14/2020||$.00||Ashton & Jocelyn DeMaster||09/14/2020||$102.02||Anonymous Friend||09/14/2020||$100.00||race sponsor||Zach and Stacy Kanis||09/13/2020||$103.30||My sister Jill DeVries told us about Estella and how you’ve loved her and the Lord through this journey. We offer our prayers and support!||Anna Dykstra||09/13/2020||$51.80||Duane and Mary Van Maanen||09/13/2020||$100.00||race sponsor||Karen Jenkins||09/13/2020||$100.00||race sponsor||Greg and Marcy Stravers||09/12/2020||$506.06||Praying for your whole family as you fight for Estella!||Andrew & Trisha Schreier Family||09/12/2020||$515.24||As a special needs family we know your journey will take physical and mental strength just like the upcoming marathon race - keep pushing through “One Day at a Time.” We will continue praying for Estella, your family, and a cure!||Anonymous Friend||09/12/2020||$54.79||Anonymous Friend||09/12/2020||$257.78||Praying for Estella||Jenni Nordaker||09/12/2020||$206.28||Lacey Henderson||09/11/2020||$100.00||Anonymous Friend||09/11/2020||$51.80||Anonymous Friend||09/11/2020||$103.30||Peilin/Fengyu Yang||09/11/2020||$100.00||Carroll Hoksbergen||09/11/2020||$150.00||What an incredibly hard journey! We are praying for little Estella, and all of you, including your other children. Hopeful for a cure!||Anonymous Friend||09/11/2020||$515.24||Steve and Lacey- Prayers that God continues to give you strength and that a cure is found for your sweet, Estella! ❤️||Vanessa Swenson||09/11/2020||$203.03||Prayers to your family for a cure!||Teresa Thompson||09/11/2020||$100.00||Anonymous Friend||09/11/2020||$103.30||Vicki Self||09/11/2020||$51.80||Marijka Michmershuizen||09/11/2020||$54.27||I don’t know exactly what you’re going thru, but I’ve been thru hard times, too, and the best advice I can give you is to keep your friends close, focus on the good things in life, read the Bible, and pray a lot. Hope that helps! Our family will be praying for you. From Marijka with tons of prayers!||Cornelia Vander Wilt||09/11/2020||$300.00||Prayers for Estella and all her friends who carry this disease and that a cure may be found.Prayers for her family as they care for her needs.HUGS||Elizabeth Oosterheert||09/11/2020||$103.30||Praying for your family every day!||Ellen Elzinga||09/11/2020||$515.24||My prayers for your family and your sweet girl.||Randy & Jodi De Vries||09/11/2020||$2,601.77||Dave & Kathi Talsma||09/10/2020||$154.79||Eden Youngberg||09/09/2020||$154.79||Stephanie Lantz||09/09/2020||$102.02||May the Lord bring healing in the bodies of children with this disorder!||Jill De Vries||09/08/2020||$.00||Chad Hall||09/08/2020||$.00||Rachel Van Maanen||09/08/2020||$.00||Beth Vanmaanen||09/08/2020||$.00||Holguin Family||09/08/2020||$350.00||Praying for you and your family.||Tim & Rindy Vander Schel||09/08/2020||$506.06||Praying for your family and a cure for your precious Estella! Donating to sponsor for your marathon.||Anonymous Friend||09/08/2020||$257.78||$250 donated to part of a mile for Matt and Rachel Van Maanen's run for Team Stellie's Race.||Chad Hall||09/08/2020||$26.06||Chad and Meriel Hall||09/08/2020||$515.24||Praying for your sweet family!||Amanda Van Wyk||09/07/2020||$.00||Rick & Carla Fopma||09/07/2020||$257.78||Nicole Vos||09/06/2020||$.00||Brad Van Wyk||09/06/2020||$103.30||Payers for you guys||Anonymous Friend||09/06/2020||$31.20||Prayers||Judith De Vries||09/05/2020||$.00||Rebecca Gomez||09/05/2020||$.00||Sherry Stewart||09/05/2020||$.00||Lyndi DeVries||09/05/2020||$.00||Melissa Schettler||09/05/2020||$.00||Scott & Rachel Renaud||09/05/2020||$1,030.18||We love you SO MUCH, Estella, and we are behind you 100%. We will see the end of AHC!||Melissa Schettler||09/05/2020||$51.80||Lyndi DeVries||09/05/2020||$26.06||Sherry Stewart||09/05/2020||$154.79||Rebecca Gomez||09/05/2020||$51.80||¡Dios les bendiga Hendersons! ¡Los queremos mucho!||Chad and Mandy Klyn||09/05/2020||$103.30||AL & Joyce Boender||09/04/2020||$26.06||Ellen Elzinga||09/03/2020||$.00||Erick and Annelise Matherly||09/03/2020||$103.30||Praying for you guys! Hope to visit you soon :)||Mark & Vicky Huizer||09/03/2020||$206.28||Praying for a cure for Estella!!||Lacey Henderson||09/02/2020||$.00||Trent and Megan Pingel||09/01/2020||$51.80||Rob and Leah Bruxvoort||09/01/2020||$103.30||Praying for a cure, and for strength for your family in the every day needs!||Steve and Tiffany Van Zee||09/01/2020||$103.30||Aubrey Blom||08/31/2020||$.00||Melissa Schettler||08/31/2020||$103.30||We’re always thinking of Miss Estella!||Aubrey Blom||08/31/2020||$26.06||Levi Slings||08/31/2020||$103.30||Kris Green||08/31/2020||$103.30||Praying||Chad Pitts||08/31/2020||$51.80||Kent Thoreson||08/31/2020||$103.30||Kayla Smith||08/28/2020||$.00||Anonymous Friend||08/28/2020||$51.80||Praying with you!||Chris & Kayla Smith||08/28/2020||$103.30||Praying for a cure for sweet Estella & your incredibly strong family!||Anonymous Friend||08/28/2020||$51.80||With love for Estella and prayers for a cure!||Dan and Jenna Huitink||08/28/2020||$103.30||Praying for and with you guys!||Susan Boxler||08/27/2020||$.00||Anonymous Friend||08/27/2020||$103.30||Praying for a cure!||Anonymous Friend||08/27/2020||$102.02||Susan Boxler||08/27/2020||$103.30||Harley and Stacey Gorter||08/27/2020||$1,000.00||Steve and Lacey, your family is in our thoughts and prayers daily. We are fighting for you every step of the way. Estella is a fighter and we love seeing her progress and meet her goals. Love you all so much!||GeorgAnne Talsma||08/27/2020||$103.30||we pray for a cure and that Jesus will keep you safe every day..||Anonymous Friend||08/26/2020||$51.80||Praying for a cure for this sweet little girl!||Anonymous Friend||08/26/2020||$51.80||Danae Dorothy||08/26/2020||$31.20||You will always find support at WPU! In the smallest and unexpected places. Prayers and support for your little one!||Shaun and Jill De Vries||08/25/2020||$1,011.11||Praying your family feels God's grace each day and a cure for sweet Estella.||Shawn DeVries||08/24/2020||$.00||Denny & Georgia||08/24/2020||$1,011.11||Given with all our love. Our prayers continue for a cure for AHC.||Becky Ochsner||08/24/2020||$257.78||Eli Herro||08/24/2020||$31.20||Mr. Henderson is for sure the best teacher ever. Anything I can do to help him and his daughter is what I will do.:)||Shawn DeVries||08/24/2020||$103.30||Ivonne Henderson||08/24/2020||$200.00||Shawn Devries||08/24/2020||$412.26||We love you all and are praying for a cure! ❤️||Tanya Bouma||08/23/2020||$.00||Lyndi DeVries||08/23/2020||$206.28||Praying for your family and a cure! Hugs!||Anonymous Friend||08/23/2020||$515.24||Continued prayers for your family and a cure! ❤️||Anonymous Friend||08/23/2020||$206.28||Karen Renaud||08/23/2020||$206.28||Cindy Stirratt||08/23/2020||$51.80||Heather Collins||08/22/2020||$.00||Anonymous Friend||08/22/2020||$515.24||Steve and Lacy, I love you guys and am praying that God grant strength and hope for you and little Estella.||Heather Collins||08/22/2020||$26.06||Rebekah Eaves||08/22/2020||$20.91||Dorothy Vos||08/22/2020||$206.28||Given with love to help Estella win the race.||Kendra Zantingh||08/21/2020||$.00||Dana Oswald||08/21/2020||$103.30||Emily Craig||08/21/2020||$41.50||Ashley Hayward||08/21/2020||$77.55||Emily Fakkema||08/21/2020||$51.80||Sending love and prayers!||Wanda VanderWerf||08/21/2020||$26.06||Father God, Be with these children and their families with comfort, love, strength and healing. Please send us the miracle of a cure in the name of Jesus Christ. Amen||Rochelle Dede||08/21/2020||$103.30||Many prayers ❤️||Denise Ver Meer||08/21/2020||$102.02||Praying for a cure and strength for you!||Nathan & Jana Rus||08/21/2020||$51.80||Renee Koneck||08/21/2020||$206.28||Katie Lambrecht||08/21/2020||$51.52|